KCTV 5: Children's Mercy patient takes on LCH with 'all the attitude in the world'
Charlotte is a “girly girl” who loves being with her big family, swimming, painting pictures and Post Malone — just like her mom and grandma. “She has all the attitude in the world,” said Charlotte’s mom, Emmry, of the spirited kindergartner. That tenacity served her well when she faced a rare diagnosis early in life.
In early 2021, 9-month-old Charlotte seemed to have a routine winter bug. Then she developed a bad rash and woke up so pale “her lips blended in with her skin,” Emmry remembered. “We had already taken her to the doctor once, but my mother’s instinct was that this isn’t a normal day care [sickness].”
Emmry took Charlotte to Children’s Mercy Kansas, where they confirmed Charlotte needed support and quickly transferred her to the Adele Hall Campus to be admitted. Within a few days, Charlotte’s rash had gotten significantly worse, and she was struggling overall. Dermatology reached out to J. Allyson Hays, MD, Director, Histiocytosis Program, to ask: Could this be Langerhans cell histiocytosis (LCH)?
See the full story via KCTV 5