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Healio: Experts, patients propose recommendations to improve clinical care of pediatric CKD

By Julie S. Keenan

A group of experts, patients and caregivers proposed recommendations to improve clinical care of pediatric patients with chronic kidney disease in a special report published in the American Journal of Kidney Disease.

“Although clinical guidelines and recommendations for the care of children with CKD exist, few incorporate the patient and parent perspectives on priorities and challenges,” Bradley A. Warady, MD, from the division of pediatric nephrology at Children’s Mercy Kansas City, and colleagues wrote. “Moreover, while such patient and family experience data are increasingly sought by regulatory agencies, they are rarely reported in combination with the perspectives of health care professionals.”

During a 1.5-day workshop in December of 2018, the National Kidney Foundation hosted 32 medical experts in pediatric nephrology and 10 parents and children/adolescent patients with CKD.

“The participation of patients and parents/caregivers living with childhood CKD in the workshop discussions added a novel dimension, experience-based relevance and credibility, and represents a key element to enhance the strength of the proposed recommendations,” Warady and colleagues wrote.


Read the full article via Healio

Kidney care at Children's Mercy